The leg spasms have not gone away, so on Monday I decided it was time to report them to the GP. My appointment was yesterday. As I thought, there is nothing much she could offer to help, other than advice to keep moving and stretching the leg, and to carry on as I have been with heat pads and hot drinks, which do help.
Any treatment plan is in the hands of my neurologist, who I'm not due to see again until June. The GP didn't feel the new symptom warranted bringing forward that appointment, which is, of course, good news. At present the consultant's plan is just to deal with individual symptoms if necessary as they arise.
The thing is that although there are some treatments to alleviate MS symptoms they are apparently not very pleasant. Even the first option, in the case of a big relapse, would be high dose steroids. I'm keen to remain unmedicated for as long as I
can and to just be careful with diet and exercise and look after myself to the best of my ability that way.
Then there is another mystery. It appears that there is a possibility that my MS may not be MS at all, but another disorder masquerading as MS.
I had a slightly abnormal blood test last summer, which the neuro wasn't too excited about. It was repeated in December but I've not yet heard the result. This may mean that it was normal or more likely the hospital have lost the results or screwed up the test yet again.
If the result of the first test is replicated then apparently the abnormality could be at least partially causing my MS symptoms. Or something like that. As the GP says nobody really knows what MS is or what causes it. It could be a number of underlying issues which all produce similar outcomes.
My MRI scan and other symptoms were certainly indicative of a diagnosis of MS, the brain lesions were clear on the scan. I suspect that if the blood irregularity does prove to be part of the cause, then the overall diagnosis won't change but maybe the treatment plan will. Haematologists will probably become involved as well as the neurologist and the MS nurse who I am due to see for the first time in April.
It's just a game of wait and see.