Showing posts with label three notable things. Show all posts
Showing posts with label three notable things. Show all posts

Friday, January 16, 2009

Computer says no

I had a true Little Britain moment earlier this week.

Last summer we lost our child benefit for son 1, because he was over 16 and attending a mental health provision with no educational element, rather than being back in school or college. I suppose he could have claimed incapacity benefit, but we didn't suggest it, not wanting him to start off adult life feeling that he has no need to study or support himself. We were very clear that we would claim child benefit again as soon as he went back to education.

He is due to start college next Monday so this week I phoned the Child Benefit office to give them the information and ask for the benefit to be reinstated from next week.

'Oh I can't take the details now. Phone back next week when he starts.'

'Can't you just take the information now, as I am on the phone?'

'The computer won't let me enter it this week. Have you got all the course details?'

'Yes, here right in front of me.'

'You'll have to phone back next week please. I can't enter them on the computer now.'

Argh!

Three notable things:

1. A lovely dinner out last night.

2. Knowing that my car is safely through its MOT for another year.

3. Catching up with an old friend today and arranging to meet another very soon.

Wednesday, January 14, 2009

Hmm...

So a Labour MP says that dyslexia is 'a cruel fiction leading to crime'?

Son 1 has relatively mild, but very real, specific learning difficulties, mainly affecting his ability to write, spell and generally express himself on paper. I had raised queries for many years before two teachers at middle school finally backed me up and agreed there was a problem. So we had him privately tested and a couple of years of extra input, both in school and with a specialist private tutor, helped enormously. But he is still not confident with writing and his ability in this area does not reflect his overall level of intelligence and functioning.

High school didn't recognise his need and took him off the special needs register. His school career subsequently went belly up, though not entirely from that cause. He is not a criminal, in fact quite the opposite, his anxiety makes him exceptionally law abiding. I do, however, know other children with dyslexia who have got themselves into trouble, largely because they too have been badly failed by their teachers and became totally disenchanted with education.

Son 1 started reception class in 1996. The Labour government came into power in 1997. An own goal?

Three notable things:

1. I am constantly amazed by how I see all of life through my internet contacts.

2. The slow job of decluttering has begun. Bags of clothing are being sorted for the charity shop.

3. Son 1 has taken a temporary part time job helping on a scheme for younger teenagers who are experiencing difficulties in life. We are so proud of him.

Thursday, January 08, 2009

Dementia

So, I now have a mother-in-law with diagnosed Alzheimers and a mother with some sort of early dementia, as yet unspecified.

My father accompanied my mum to the GP on Tuesday and discovered that what my mother had reported back from a phone conversation before Christmas, ie that her difficulties would not get any worse, is incorrect. Was that incomprehension ( most likely) or denial?

Anyway they are going to need some support, albeit from a distance. My dad is, quite correctly, wanting my mum to maintain her routines and keep as independent as possible, but it is clear that the deficits she has suffered in language skills make social communication and even things like shopping difficult at times.

Now that is when the penny dropped. Her difficulties now are not so different to autism and therefore the sort of strategies we all use for our autistic kids, such as regular routines, visual timetables and alternative means of communication can all come into play. She occasionally gets very confused about what day it is, so I just suggested that they actively cross each day off on a calendar, so that the next morning she can see clearly the day of the week. Simple, yes. Obvious, well yes, but perhaps not if you are in the middle of it. My dad found a suitable calendar yesterday and started straight away. I think he will need to be bringing his skills as a former primary school teacher back into practice. Let's hope it helps.

If anyone has experience or tips on helping a relative with dementia, I'd be really interested to hear.

Three notable things:

1. The GP said Son 1 has 'the worst chest infection he had heard for a long time'. Strong antibiotics and inhalers were prescribed and seem to be starting to work.

2. Pressing on with the novel, slowly but surely. The words are coming in short bursts rather than a steady flow.

3. A much better mark for my second OU writing assignment, a film script. Hooray!

Friday, January 02, 2009

The festive season in review


Actually it wasn't too bad. No one was ill over Christmas, though Son 1 has just broken our run of good health by coming down with a very nasty cough virus yesterday ( and no, it isn't due to too much partying, though he did that too!)

Not putting up decorations meant that home seemed normal for Son 2, though I felt that this year he had more understanding of other family Christmas traditions. For the first time ever he decided to try the turkey and couldn't get enough of it. He also opened all of his presents on Christmas Day rather being distracted by the first one or two and ignoring all the rest. However he decided to get up between 5.30 and 6am every morning until today, when Son 1 was up and needing me to find medication at 4.15am...

We have had four playscheme days, which has helped enormously as Hubby and Son 1 have been working over the holiday period. I have introduced Son 2 to YouTube, but he is so adept at navigating around I think he must have already used it at school. We have bookmarked a few starting points and he is discovering videos of old kids TV programmes. Currently we are being treated ad nauseam to 'Barney in Concert' which we had on both video and CD years ago. Eek.

Three notable things:

1. I managed to be very restrained when I visited the sales, though I have bought a couple of new warm sweaters online.

2. Taking a quick breather from OU study, though I shall have to restart in earnest next week.

3. Deciding not to invite my sister's family down for the day. Our house is just not spacious enough for an extra four big people as well as Son 2. We'll invite them in the summer instead and pray it doesn't rain...

Saturday, December 20, 2008

It's Christmas

I'm starting to feel Christmassy at last. Only a teeny bit though.

School has finished and my last OU assignment of the year was sent off yesterday. Now I can focus on other matters in hand. The presents are purchased, with due consideration to the credit crunch. The cards are sent. We have no tree, as son 2 has been very upset by the tree over the last few years, too much of a change to his usual environment. Perhaps we will have another go at sneaking it up at the last minute this year. Son 1 is ill with a nasty gastric upset and had to miss work yesterday. It wouldn't be Christmas without some sort of illness here.

So for the next few days I will be house tidying, present wrapping and food shopping...

Three notable things:

1. The X Factor - the right result. But I hope JLS do well too.

2. I now have four versions of Hallelujah on my computer. Leonard Cohen, Jeff Buckley, KD Lang and Alexandra Burke. Yes, I like that song...

3. I'm feeling sad about Woolworths closing, even though it has been rubbish in recent years.

Saturday, November 15, 2008

Another brick in the wall

This year has been relentless, as we have stumbled from one family crisis to another. And still it has not ended.

On Monday evening I got a call from my sister, to say my father had been rushed to hospital with chest pains. On Tuesday morning I called my mum, to find out she didn't know where he was and thought he might be on his way home. It took me a few phone calls to find the right hospital and ward, because admission details had not been updated on the computer overnight, but I did eventually track him down. He was waiting to be seen by the doctors.

Speaking to him after lunch, the prognosis did not seem too good...the doctor thought he would need another angioplasty (he had one earlier this year after a very near-miss heart attack). But by the next day, when he had undergone tests and been seen by the consultant, things were looking better...the pain was eventually put down to a gastric problem and he was sent home on Thursday afternoon.

We are keeping our fingers crossed for no further scares, I don't think my own heart can cope with much more.

Three notable things:

1. Catching up this week with old friends I had not seen for a long time.

2. Feeling very sad over the deaths of yet more children, both in the news and closer to home.

3. Receiving a pristine new textbook from the OU to replace the one torn by son 2.

Thursday, November 06, 2008

Self harm

Self harm is a very current topic of concern in this household, so I was interested to find a video on Caroline's blog. It is a trailer for an educational DVD made by Harmless, a support organisation I had not heard of, but will certainly be making a note of.

Self harm is much more common than people realise and is undertaken by both sexes. Some self harmers have serious mental health issues or learning disabilities, but many more don't, they are just ordinary people struggling with life. Some kids even get drawn into self harm through peer pressure.

Self harm needs to be brought out into the open, to stop being a taboo. Hopefully Harmless will help, through this DVD aimed primarily at health and social care professionals.

Three notable things:

1. Michael Crichton of Jurassic Park and ER fame has died. What can one say about a man who brought George Clooney to my attention (as Dr Doug Ross in ER)?

2. I went shoppping yesterday and came back with secondhand books for my writing course but not the item I needed.

3. We still have ongoing problems with our parents on both sides of the family, which led to a call from a social worker yesterday. It is so hard not being close enough to do anything practical to help.

Tuesday, November 04, 2008

Write on

I'm back to the novel in earnest, rewriting my first chapters. I think I have found the right starting point at last, now I just need to find a way of fitting what I have deleted back into the narrative structure at a later point. Some recent events have also provided me with new material to stash away in my notebook, so I am feeling very positive.

Your Messages is also back! It is in a different format this year, with no publication involved, but there is a prize of books for the entry Lynne and Sarah consider to be the best. Unlike last year, I will not have time to contribute every day, but I did post a piece yesterday and will definitely dip in and out over the month. If you are not doing NaNoWriMo then do take a look at Your Messages, it is great fun and much less onerous, as this year posted pieces can be 30 or 300 words.

Three notable things:

1. We are waiting with bated breath to see what America decides today. Let's hope change will come.

2. I will be off shortly with son 1 to investigate college possibilities for January. He is still educationally very fragile and anxious, so we will need to be vigilant that his needs are understood and adequate support offered.

3. Son 2 doesn't seem quite himself, tired and quiet. Hope he is not getting ill as soon as school has restarted.

Monday, November 03, 2008

Gentle hands

Well the debate may be long since finished, but the issues it raised are still churning around in my head, keeping me awake at night. Yesterday I actually found myself hyperventilating with anxiety when Hubby took son 2 out for a walk, even though they were just going on their regular stroll to local shops where he is well known.

Hubby and I were discussing how we could try to make sure that we discouraged son 2 from trying to approach strangers ( he doesn't often anyway) without stifling his desire to communicate, which is something everyone has worked so long and hard to encourage. We couldn't really come up with an answer.

We thought back to how he used to be. When he was younger he was in a huge autistic bubble. People, including most of the time us, didn't mean anything to him. He had no desire to communicate with anyone. He only emerged briefly from this bubble when he felt threatened, a sort of fight or flight reaction. His way of communicating at that moment was to bite.

My lower arms would be covered in bruises from his bites. Sometimes he would sink his teeth in and almost hang from my arm. We were lucky that there were very few injuries to other children, because son 2 never really has had any interest in his peers, but staff working with him would also get bitten. Like many kids on the spectrum, he has no impulse control or sense of danger.

It was a relief in some ways when the biting changed to pinching. Still painful, but not as bad. The pinching remains a behaviour to this day when he is very distressed, but it is rare now and usually directed at himself rather than others. Instead we taught him what we called 'gentle hands', in other words when he felt the uncontrollable impulse to pinch someone's arm, he should stroke or pat gently instead. He later spontaneously developed this to show affection as he is nonverbal.

It worked, but clearly now he is bigger it seems to have made him potentially even more socially unacceptable to others. Now to my mind a gentle pat or stroke is a million times better than a bite or a pinch, but of course others don't know his history, don't appreciate how far he has actually come back into our world.

Time for a new strategy I think, but I'm damned if we could think of one yesterday...

Three notable things:

1. We watched the F1 Grand Prix on TV yesterday. Well done, Lewis Hamilton, but you did put us all through it on the way.

2. School is back today but the council 'forgot' to arrange the transport until the escort rang them to remind them this morning. As a result the bus was very late and there was stress all round here at home.

3. Time for a much-needed coffee now, before I start work!

Sunday, November 02, 2008

Another course

Some of you may remember that a year ago I gave up my voluntary role as treasurer for our local ASD support group. It was a great relief after 9 years, but I did promise that I would stay involved in a non-official capacity.

I attend the support coffee mornings once or twice a week, supposedly for my own support needs, but have actually found myself still being needed to talk to often distressed parents, as if my role in the organisation had not changed. We had been increasingly recognising that to do the job properly at least some of the volunteer committee members needed to have had some formal training in basic counselling and listening skills, so two people took an introductory course at our local college last year. When I first started working with the group I did have some rudimentary training in listening skills provided by another charity, but that was a long time ago. However I did not want to commit to a college course, since due to everything else going on here my study needs to be flexible and home-based.

I needed to find 10 more points to complete my OU degree, so I was delighted to discover a new course D171 Introduction to Counselling, which I have just started alongside the writing course. It is level one, so not too onerous academically, but will provide an introduction to skills that I will be able to use in many aspects of my life. The charity benefits too, as I am funding it myself courtesy of my Tesco vouchers.

And I've just had my arm twisted to return to the charity management committee, though I have made it clear I am not going to be treasurer again. A friend of mine took over that role from me, she is doing a great job and I am willing to advise when needed. I do have a wealth of experience to add to the committee, yet I have made it understood that from now on my input is on my own terms, I no longer want to feel obliged to work unpaid three day weeks!

Yes, I know I'm mad...

Three notable things:

1. Good tutorial yesterday...nice approachable tutor, five chatty students, it flew by.

2. The travel was fine, I was incredibly lucky with bus and train connections. In fact I got down into London remarkably early, having allowed extra time.

3. It was a bit of a shock to come out of the tutorial into pouring rain and a howling gale. I couldn't even go straight home, as I had to stop off in our local shopping centre to get some shopping for the boys.

Friday, October 31, 2008

Writing again

My first assignment for the OU Advanced Creative Writing course was duly despatched last night. After spending time on the novel and other small bits and pieces it was weird having to write to length and to a deadline again, but I'm sure I'll get used to it. Tomorrow is a writing workshop, the first of two on the course and a chance to meet our tutor, so I'll be off into London for the day, a welcome break after a very stressful half term.

I have been inspired and encouraged by Calistro's recent wonderful news, and now that the assignment is out the way it will be back to the novel next week.

Three notable things:

1. Snow on our cars yesterday morning, almost unknown in October.

2. Our little neighbour was thrilled with the Maltesers we gave him for Trick or Treating this evening.

3. Son 1's discharge is being planned due to the fantastic progress he has made in recent weeks.

Tuesday, October 28, 2008

In the worst possible taste...

Call me old and boring if you like, I think I must be one of the few people in the world who doesn't 'get' Russell Brand. And Jonathan Ross' interview techniques can sometimes leave me cringing too, especially when he can't take his eyes off a female guest's cleavage.

The BBC pays these two men a lot of money, by anyone's standards. But their latest stunt was just sick. I'm not sure an apology is enough, learning some self control would be better.

Three notable things:

1. A recent disagreement on an internet forum has left me wondering yet again why some people can not and do not want to understand the challenging behaviours that can arise in people with learning disabilities but no obvious physical disabilities. Challenging behaviour can restrict lives just as much, if not more so, than being wheelchair bound.

2. The sun is shining. Hooray!

3. I've still got that pesky commentary to write...

Monday, October 27, 2008

The Picador blog

I have a post on there today.
Read it here

Three notable things:

1. My OU assignment story is written. Just the commentary to go.

2. Thanks to some extra respite care last week, I am surviving halfterm so far...

3. I'm on The Picador blog today. Did I already mention that?!

Wednesday, October 15, 2008

To MA or not to MA?

Longer-term readers here will know that I had a plan for my writing career which went something like this...finish my 'accidental' OU Open degree with the Advanced Creative Writing course then try to get a place on a Creative Writing MA, all whilst writing my 'blockbuster' novel.

Well of course I was at risk of overloading myself, especially whilst juggling so many other family things at the same time. I have studied almost continuously for the last four years and I think I might actually appreciate a break from academia. There are also a number of practical barriers to accessing an MA course at this stage of my life. Not totally impossible, but not easy.

So this week I have done some serious thinking and I have committed myself to the novel. I shall still be doing the OU course, which will be complementary, but for now the idea of an MA is on the backburner.

Finish the degree, finish the novel and the MA courses will still be out there. In fact there may be even more choice. But I wonder if I will still want to do one?

Three notable things:

1. Son 2 has started rock climbing with school. I would love to be a fly on the wall.

2. I did a very small charity 'audit' yesterday as a favour. I'm so glad I no longer work full-time in accountancy!

3. I'm very impressed with the look of Caroline's new venture, BubbleCow. I'm sure it will be a great success.

Tuesday, October 14, 2008

For those who have Virgin media TV...

...put it on to channel 109 and tell me how many hours you could watch/listen to that without going completely mad.

(Son 2 seems to think it is the only channel worth watching. He is very controlling. I am trying really, really, hard to ignore it, but I fear my mental health is suffering...)

Three notable things:

1. After a flash of inspiration on a bus last Saturday, I have written half a story for the first assignment of my new writing course.

2. I am getting excited that the course will also help me to pick up the novel writing again.

3. Over the space of three days I lost a tutor and gained a new one.

Tuesday, October 07, 2008

The X Factor

I live in a testosterone-fuelled household, so Saturday evening viewing has to be ITV rather than Strictly Come Dancing, which I can of course catch up with on BBC iPlayer anyway.

The X Factor is so far living up to what you'd expect. An array of weird and wonderful contestants at the audition stages. A handful of people who can sing but perhaps get further than they otherwise would because of their backstory. Judges sniping at each other from time to time. A new judge, Cheryl, who has shown an unexpected emotional side.

And at last we now know the final 12 for the live shows.

The groups - Louis
Frankly I don't care, none of them will win, but I liked the boy group best.

The over-25s - Danni
Did you notice how Danni looked a little like Joan Collins in the last programme? Anyway...Rachel, raw talent but a risk. I personally would have chosen Susie over Ruth, she was more consistent. Daniel, lovely guy with a very sad story, but not a star...??

The boys - Simon
Austin can sing but can he hold it together for the live shows? The other two don't inspire me yet.

The girls - Cheryl
The strongest category this year, crammed with Amy/Duffy wannabes (I love Amy and Duffy's music so in my mind that is not necessarily a Bad Thing, but I thought they were seeking someone original this year). There were four very strong contenders so sadly one had to lose out, but personally I think I would have chosen Hannah over Diana.

Three notable things:

1. How do I write a constructive criticism of a short story I hate ( but was written by a member of our course team)?

2. A long phone conversation with an old friend ths morning provided a good catch-up and some unexpected sad news.

3. Son 1 will be 17 tomorrow. My baby is old enough to learn to drive. How can that be?

Monday, October 06, 2008

Reviving bookersatz

Unfortunately Annie, my co-editor and I were both otherwise engaged over the summer with family matters, study and life in general, so bookersatz had to take a back seat.

Today I have posted up a great review of Caroline Smailes' Black Boxes by HelenMH. I have one or two other reviews in reserve but we are now actively looking for contributions. The philosophy behind bookersatz is to post reviews of books we have enjoyed and would like to recommend to others, and to encourage our readers to add to a debate via the comments.

So if you would like to send in a review for consideration (200-300 words is ideal, certainly no more than 500 words) please contact me for details, the link to my email is in my Blogger profile. We will sort out the layout and photo, we just want as wide a range of books and contributors as possible.

Three notable things:

1. I can't believe I haven't blogged about this year's X Factor yet. Watch this space.

2. We are searching for cures for chronic insomnia (for son 1, not me!) Any ideas?

3. Reading, writing and a little bit of studying. I'm looking forward to the next 9 months...

Friday, October 03, 2008

Silent Witness

Did any of you watch this on Wednesday and Thursday?

I don't want to give too much away, as it is on iPlayer for anyone who wants to catch up, but I just found the story so depressing. It depicted an area of London where some of my friends have lived, indeed one is still there. It showed the sort of society which spawns the knife and gun crime which we hear so much about, the hopelessness, the inevitability that the cycle of violence will continue.

Scary.

Three notable things:

1. I was stared at by two foxes in the garden yesterday. They are getting bolder.

2. Our next door neighbour knocked last night as her shoe had flown over the fence into our garden whilst playing football with their son.

3. This made me laugh. I never thought I would find Schiller funny.

Wednesday, October 01, 2008

A short breather

So the final assignment for E301 has been submitted and received by the Open University. I can finally pack the books away. It has been a fascinating and challenging course and I don't regret having taken it, even though it was bloody hard at times!

Onwards now to writing again. But I decided to take this week off. On Monday I wandered around charity shops in search of play scripts and screenplays, as the Advanced Creative Writing course concentrates on drama in all forms as well as poetry and prose. I sat in Starbucks and had a coffee. I took the bus home in the sunshine. Yesterday I huddled indoors, feeling the cold. I started to tidy the house. I read lots of blogs and surfed the web. I did a little knitting. I dragged son 1 out of bed at lunchtime.

Today I went to the parent support coffee morning and managed to fall flat on my face in Tesco's carpark. Life goes on as usual...

Three notable things:

1. We continue to celebrate the tiny steps son 2 is making in his communication. On Saturday he told his music therapist that it was time to finish by pointing at her watch and then at the door.

2. I've had a bank account with Lloyds TSB since I was 18. Should I be worried?

3. Sarah Palin's political ineptitude is astounding. It would be funny if it weren't for the fact that she could end up a heartbeat away from being President of the USA.

Friday, September 26, 2008

Black Boxes


Last night I had a lovely evening out at the launch of Caroline Smailes' new novel, Black Boxes, at Borders in Oxford Street. Sadly I couldn't make it in time to hear Caroline read, but she looked gorgeous and had a constant stream of customers at her signing table, while her husband and three beautiful children helped out amongst the guests.

It was rather like a bloggers reunion...lots of lovely Novel Racers, of course, including Liz on a flying visit back from the Middle East, but I also met Helen - who has written some great reviews for bookersatz - Sue Guiney and DJ Kirkby for the first time, all of whom were so friendly and it was great to see Sarah Salway again ( for those of you who don't know, Sarah co-edited the book Your Messages in which I got my first pieces published in print earlier this year).

Despite my lateness I arrived before the wine ran out and I came away with a signed copy of Black Boxes, which I am very much looking forward to reading. Having just done the OU E301 course, I now have an even greater appreciation of Caroline's style and how she has brought her linguistics background to play in her novel writing. It is all very clever, but those of you who have read any of Caroline's books will already know that!

Three notable things:

1. My end of course assessment for E301 is finished. I proofread it on the tube into London last night, put a few minor adjustments in this morning, will print it over the weekend and it will go on Monday. Hooray!

2. The results of all the tests my mother has been given are starting to come in. Nothing too awful yet but no firm conclusions either.

3. If you like knitting take a look at this new online shop, Cafe Knit. I think the website design is just beautiful.